Family Stories - Beyond Batten Disease Foundation

What is Mad Cow disease?

Genetic and Rare Diseases Information Center

Rare Genetic Diseases

Rare your Blue for Dup15q!!!

We are so grateful for every member of our rare herd 🦓 Today, we honor our patients, families, and partners whose tireless advocacy brings visibility and hope to rare disease communities. As we head into February, a month dedicated to elevating rare disease awareness and accelerating progress, today marks a meaningful segue into Rare Disease Day and the collective action ahead. #InternationalZebraDay #RareDiseaseAwareness #RDD2026 | Orsini - Rare Disease Pharmacy Solutions